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Thank you, I am desperately trying to find the right help for my 14 yo daughter.

Thank you for an honest video

THANK YOU SO MUCH! My 10 year old son, and 8 year old daughter both have ARFID. My son is wasting away in front of my eyes. We have been through a lot of feeding therapy and I can't seem to make headway. Hearing you speak about what helped you clues me into the fact that I need to approach this from a mental/emotional healthcare standpoint along with his feeding therapies. None of his doctors or therapists have made mention of this or have even indicated this could be part of the root cause. I don't know how my kids developed PTSD around eating and food, but it is my mission now to find out. Thank you so much.

This really helped me, thank you. I've recently been diagnosed with ARFID

Is there any help available in Australia?

I have ARFID. After watching some of your video, I've concluded that this is utter bullshit.

I have a 10 year old with ARFID. She really wants to be free of it. Can you make a preteen video I can share with her?

I am so so so happy this worked for you. I'm far too logical for a therapy like this to work on me. I know kidneys don't actually open or flower, and I know adrenal glands can't be turned on and off with human exterior touch. I'm just too scientific for a therapy like this to work on me. I hope there is something like that out there for me.

I have ARFID too. Happy to not be alone ♥️

i just bought your moms book a few days ago, i’m halfway through and almost every single word in there i can relate to so much it’s crazy. i am not officially diagnosed with arfid, but my family and my doctor have suspicions. your videos and this book are making me feel much better and i don’t feel so alone. thank you so much.

I advice everyone with ARFID who've eaten a restricted diet for some period of time, to go take a blood test and see if you are deficient in anything. Vitamins, minerals, iron etc. If you are, really try to eat the supplement/medication you get for it, it will save you health problems in the future. Even if you are normal- or even overweight you might very well be malnutrioned. Take care!

update? :)

Talk more about food and less on personal life that's why ppl click to watch

I never dealt with ppl picking on how i eat it was more family which is way worse was an everyday thing for awhile

I think somatic experience therapy sounds very much like mindfulness ad relaxation techniques? To get grounded in your body, maybe your breathing, claming your physic down. Would you think those could have the same effect or does it have to be this special therapy form?

I've never understood myself because of my eating habits. Videos like these have helped me, I felt so alone in the way I eat and how unhealthy I am. I am finally finding solace.

the camera growling during the first half of the video is so annoying xD

All i can say is thankyou

Is it possible to develop this during adolescence? Most cases I’ve been researching are from childhood? But I’m beginning to think I’m slipping into this or something similar (in 15). Idk how much of a picky eater I was as a kid though. I do have social anxiety and depression, that I’ve been officially diagnosed. There are certain foods I will not touch if they are in certain states (ie; I will not eat tomatoes if they are chopped up and thrown into like a salsa or chili -spelling?- or whole UNLESS they are cherry tomatoes. I also refuse to eat steak/most meats unless I like the texture. Just stuff like that) and I’m not concerned with appearances like a lot of eating disorders. so am I just super picky? Can you develop this after childhood? I really hope I don’t come off as someone who diagnoses themselves with random stuff they read about once on Tumblr, so sorry if I do 😅

Everytime I try to eat fruit or vege I nearly vomit and just dont want to try it again

I have arfid and I have scrapped the cheese and all the toppings off my pizza sense I was small I’m so excited that someone else actually did this too!

Arfid is hard to beat especially when pregnant i try to force myself to eat for my child but its hard beong afraid of food. My ex husbands sister poisoned me for 8 years with foods that im legitimately allergic to so im afraid of food now.

just got diagnosed with this today thank you for making this video<333

I have Arfid and all I eat are very certain things ... and to be honest I don't know why

I also have this my safe foods are ramen/pho/any noodle soup besides chicken noodle, kimchi, apples, green beans, potatoes, tofu, peanuts, rice and seaweed sometimes French bread only when it’s warm

what type of therapist were you seeing?

I'm 28 years old and have AFRID and like you it started when I was a toddler. Just curious since its been a couple of years if you have expanded your safe food list farther? Hope you are well ❤

I have the same thing. I hate it when people say I'm picky because I'm not! I'm not afraid of the food but I am at the same time. I can't explain it. I'm happy to know other people know what I'm going through. Anyone else with ARFID, be strong! There's always someone you can talk to.

I am fourteen years old and I only eat about fifteen-twenty things. Whenever I attempt to try a new food, I have a panic attack and start choking and throwing up. I have not started therapy, but hopefully, I will get recommended. At first, I just thought it had to do with my Autism and/or OCD, but I learned that ARFID is actually linked to those two disorders. I don't want to keep living like this, and I definitely don't want to die an early death. I also have asthma, so exercise is also hard. I want to live as long as I can, so I'm praying that I get some sort of help before it is too late.

where in az do you live?

I don't think I could do that type of therapy. I have a phobia of the human body, organs, and blood, so just listening to you talk about this therapy and your kidneys made me really anxious. :/ To the next therapy, I guess.

Hi, McKaelen. You are lucky to have been diagnosed and to find good therapy while so young. I am currently 55, and did not know my eating disorder was a real thing until I was in my late 40's. I had seen a PHD educated nutritionist who was a friend of my wife. I told the nutritionist how I only eat 3 or 4 things and that anything else makes me throw up. She immediately told me I had "sensory tactile aversion disorder", and as a result, I had S.E.D., or Selective Eating Disorder. I went online to look this up, and found only minimal bits of info that were helpful. Then my life changed when I found a Yahoo Group, cram filled, with people exactly like me. Many in the group would only eat grilled cheese, just like me!! I felt for the first time like I was NOT some freak of nature. There still has never been any kind of treatment that proven successful for me. I still only eat the same things, which are all very fattening and unhealthy. Currently I weigh about 450 pounds, down from 502 last April. I am approaching a diet with the same method I am used to, which is eating the same thing every day. I have found I can eat brown rice, although I certainly do not enjoy it. For me it's like taking medicine, something unpleasant you do because you HAVE to. But the reason I wanted to message you, is that only like minded individuals can relate. I am very lucky to be happily married to someone who is very understanding and sympathetic, not to mention accommodating. But even she will never fully understand that for me, eating is a very personal experience that I do only when alone. Much like taking a shower. This eating disorder has gotten in the way of my social life, my professional life and certainly played a part when I was pursuing a lady romantically. The funniest thing about all this, to me anyway, is this: I will see someone who I haven't seen in a while, like my brother, who knows me very well, and he will say, "WHAT!!!?? You're still not eating regular food??!!!!!! And the questions, oh GOD how I hate the questions. I think that is why I always eat alone, or just with my wife. Please keep in touch, I would like to hear that you are doing well and staying healthy. Kind regards, Dave

I was misdiagnosed with atypical anorexia when I was 9, and I would always tell the doctors I don't think I'm fat, I don't purposely restrict to lose weight, none of that. Nobody believed me. When my weight got low was put into anorexia treatment, and became suicidal because I didn't feel fat and they tried to make me admit to lying when I wasn't lying. I wasted a month and a half of my life away from home stuck in a room in a treatment facility. All I wanted was carbs and cheese. I was told I was lying so many times, until I got my guardian angel, my counselor Katy. She did a lot of research and found the diagnosis of ARFID, and I started crying because it fit me so well. If it wasn't for her, I'd not be alive.

what kind of therapist is this??

I want to get rid of this. I hate being the special one in my family. Having my parents cooking food for them and a separate one for me. My mother understands about this but my sister and my father still pick on me 16 years later.

i thought if you have arfid ur skinny af but i guess not

Thank you for sharing.

I recently went to see someone called Felix Economakis about this in london, (the heath therapies if you want to look it up) because i had it too, and you literally go in there for an hour and i've had this for 16 years but an hour later it was gone. This isn't some sought of advertising thing i just wanted you all to know there is help available because i know how much it affected my life and i thought there was no way out. It was quite expensive (about £280) but to be rid of ARFID for the rest of ur life its not that bad. There are three easy steps he goes through with you and the third one you can either be fully hypnotised or like me, fully conscious and awake and just talking to him (yet it works). I had to take 10 new foods with me and i cried when he asked if i would ever try them. One hour later and i ate every single one. My mum came in with me and cried too, she couldn't believe it. He's so lovely and understanding, he can do it through skype for everyone around the world! Xx

Anyone from Arizona who knows a therapist? I have this, I called it selective eating, but my gag reflex is so bad I won't try anything, prefer to starve. This is ruining my life. Thank you.

I'm thirteen years old and I have ARFID, and I go to therapy for it. I've had it as long as I remember, but I was only diagnosed a year ago. My parents always just called me an extremely picky eater, until my mom read an article on this. I'm really glad that they know what it is, because they were planning to do the "they'll eat when they're hungry" method, which definitely wouldn't have worked out well. Sleepovers are really hard, whether they're at my house or someone else's. If they're at someone else's house, I have to pray that they'll have a food I eat. If they don't I just say that I'm too tired to eat, or that I ate before I came, because I don't want others to judge me. If they're at my house, my parents usually make pizza or something, and my friends always stare at me eating my (all in separate bowls/plates) buttered noodles (no sauce), Lima beans from a can, and a bowl of unsweetened applesauce. I always eat the same thing for breakfast, Cream of Wheat and a piece of buttered toast. Sometimes my girl scout troop or just my friends and I will end up going to a restaurant, and I have to just eat a roll from the bread basket. Whenever anyone ever asks why I'm not eating, I don't tell them about my disorder, because usually if I ever do they'll associate it with anorexia somehow and just stand there looking at me and whispering.

I'm 12 and I have been a picky eater all my life I almost fill like my brain is messing with me I might like something one day then all of a sudden my favorite food becomes my worst food if there is a weird smell to it then I try eating it again I gagg then I get scared of the food.

My 5 year old daughter is about to be evaluated for AFRID and start therapy. Thanks so much for sharing your experience. ❤️

Hey, I'm 18 and have had this for my entire life. I found out about ARFID a couple years ago and saw an exact description of myself in articles I found. I haven't been officially diagnosed but I am sure this is what I have and I have a doctor's appointment getting scheduled tomorrow. I am scared to see what will follow that, but also relieved. There just comes a point when you realize you can't live this way for your entire life. It only occurred to me today that there might be people on UA-cam who have talked about this eating disorder and it's a relief to know I'm not an anomaly. Thanks for sharing!

I think there's a link between epilepsy and picky eating! It's got to be intestinal!

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I was a lot worse when I was younger, I'd only eat white food (plain pasta, white bread rolls, white chocolate, plain chicken, cereal) but now it's slightly more varied. The foods I eat are: Cheese pizza Pasta with butter White bread toasted with butter Chips (French fries) with salt, and not the oven type Some types of crisps, usually just salted Chicken breast (plain or chicken nuggets) Cereals (not oats) Plain white rice Chocolate Steak Ice cream (as long as it's just ice cream and doesn't have any bits of fruit in it) I only drink water and hot chocolate, and occasionally blackcurrant juice I think that's it.. No fruit or vegetables, and that's been my extent of diet for the last 10 years, before that there was less on the list

My son is 13 and I've never heard of this eating disorder but it fits him perfectly.I even started telling people that he wasn't just a picky eater that it had to be a disorder because he is so afraid of food. We had a behavioral therapist come to our house and try to force him - it was aweful to watch so I've been much easier on him.My question is for him to change does he have to see it as a problem and want to change? Because right now he thinks it's ok to eat Nutella sandwiches for breakfast, lunch and dinner.I just want to be healthy and happy.Thanks for the information

So i'm 16 and i'm really tiny. I'm 5'0 and 75lbs. I don't eat a lot. I either don't get hungry, or I do but eat just a little and then get full, sometimes when I won't even eat when i'm hungry because there isn't any food available that I feel like eating, or I just simply can't find the motivation to actually get something to eat. I've been this way my entire life and I never realized it was a problem until people started making fun of me for being so skinny and it made me really insecure people would call me anorexic but I know i'm not because that would imply that I don't eat a lot in order to loose weight but and I would acctually try to gain weight but it's just so hard. I also have a hard time finding clothes that fit. Nobody seems to understand and I never understood what was wrong with me. I wasn't diagnosed with ARFID but it's the only thing that makes sense.

I have ARFID. Nobody understands it. I like that there's others and I'm not alone.

+McKaelen Elliot Hi McKaelen!!Thank you for your video! Do you know if there's some difference between ARFID and picky eating? Can your list of foods change depending on the phases of the disorder/periods of time? I find myself to eat very little amount of foods sometimes and just few types/cathegories of food, but i'm still trying to know more about the way I eat..Do the way you eat affect the way you see yourself, for example if you eat just some foods for a long period of time and you lose weight because the choice is limited and you don't get all the nutrients, this triggers you to lose more weight or it's just something you don't pay attention to? Thank you so much.